Unable to Tolerate Migraine Medication, She Turned to CEFALY: Lori’s Migraine Story

About Lori

Âge : 52
Location: Fayetteville, North Carolina
Nombre d'années de migraines : 10
Occupation: Developmental Therapist (infants/toddlers)

How long have you had migraine?

10 years

Généralement, quand est-ce que vous avez des migraines?

Aucun schéma, c'était un début soudain à l'âge de 42 ans sans migraines avant. The severity prompted multiple neurological studies and testing including tests for TBI and MS. Initially, the first migraine was so severe it was feared it was a brain bleed.

What did you try before CEFALY?

Multiple medications. However, I experienced the MOST extreme side effects and all had to be terminated.

Quelle est la sensation de votre migraine?

Nausées, vomissements, vertiges, évanouissement, vision déformée, démarche instable, incapacité de s'asseoir, de conduire ou de marcher aux périodes les plus graves. J'ai des lésions cérébrales et comme elles sont un peu partout, la migraine peut se déclencher de n'importe où. When I have a migraine it's very sharp, almost feels like a seizure might but within my brain. It's hard to explain.

Comment avez-vous entendu parler de CEFALY?

My neurologist suggested it as we could not get my migraines under control with medication due to the side effects.

Comment utilisez-vous CEFALY?

AMAZING.  I can use it any time of day outside of my nightly use and I have been able to eliminate all meds except for promethazine, which controls the nausea during or after treatment with my CEFALY.

Qu'est-ce qui vous a donné l'envie de partager votre histoire?

Far too much emphasis is often placed on pharmaceutical options. Due to my extreme side effects with all kinds of medications-even diphenhydramine [Benedryl]-I was suffering without any end in sight. J'ai dû arrêter de travailler, j'étais en principe confinée à la maison, sauf si je sortais avec un membre de la famille en raison des évanouissements, et j'avais des migraines qui duraient des semaines. CEFALY allows me to treat the migraine at onset, but also I can use it nightly as part of my bedtime routine and often thwart the daily migraines I was having.

At the onset of my migraines my first migraine lasted 6 weeks with hospitalization. IV drugs as well as a litany of other drugs attempted to reduce or relieve the migraines, but they did not work. J'avais perdu l'espoir de vivre sans migraines et appris en fait à vivre avec la « douleur ». Certains jours étaient meilleurs que d'autres, mais le pire était d'attendre une ponction lombaire car elle soulagerait au moins temporairement les migraines pendant une semaine ou deux.

Now with my CEFALY use on a daily basis I have gone from 15-20 migraines a month to 3-5 a month with reduced intensity, and duration. J'ai aussi constaté que le fait de pouvoir utiliser le dispositif aussi bien comme mesure proactive qu'au début d'une migraine a énormément contribué à mes résultats.

I am thankful each day that my neurologist looked outside of the pharmaceutical box to offer other suggestions. While at first I felt that the CEFALY was "too good to be true," after 6 months of tracking my migraines it truly went above all claims. My neurologist actually said after a year of treatment that I could be a spokesperson for CEFALY because it has worked so well for me. Because of underlying issues with my MRIs I was not a candidate for neurotoxin injections and basically was out of options before CEFALY was approved by the FDA. I was given my RX for CEFALY within weeks of the FDA approval and have benefited greatly ever since. My medical records substantiate the efficacy of CEFALY in my situation and the fact that I have gone from almost monthly neuro appointments to yearly follow ups is in itself a success story.

(Interview from 2020)

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